A Florida program guarantees support to families of severely mind-damaged infants. Instead, parents have been compelled to choose between parenting and a paycheck. Poor communication and bureaucratic hurdles have made the state of affairs worse. ProPublica is a nonprofit newsroom that investigates abuses of energy. Sign up to obtain our largest stories as soon as they’re revealed. This article was produced in partnership with the Miami Herald, which is a member of the ProPublica Local Reporting Network. JACKSONVILLE, Florida - Over two many years, Choi "Julie" Nguyen bounced from one low-paying job to the following: dishwasher, custodian, manicurist. As a single mother elevating two daughters and a profoundly disabled son, Nguyen may by no means hold a job for long. Inevitably, the nurses Nguyen relied on to care for her son, Justin, would arrive late or not at all. Who would suction his mechanical airway, fill his feeding tube or turn him in bed to stop stress sores? Who was going to sleep on the sofa on the hospital when Justin had surgical procedure or fought life-threatening infections?
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